Other Resources - Bioethical
- The purpose of the
National Bioethics Advisory Commission
is to provide advice and recommendations to the US National Science and
Technology Council and others about bioethical issues related to
research on human biology and behavior. Several publications can be
downloaded from their Web site related to research involving collection
of biological specimens.
- To quote their Web site: "The National Reference Center for Bioethics Literature
is a specialized collection of books, journals, newspaper articles,
legal materials, regulations, codes, government publications, and other
relevant documents concerned with issues in biomedical and professional
ethics."
- The National Institutes of Health Bioethics Resources on the Web site provides a number of annotated web links.
- The Code of Federal Regulations covering the Protection of Human Subjects provides the detailed regulations the Institutional Review Boards at UNC must follow.
- The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research should be read by all researchers involving human subjects.
- The Declaration of Helsinki was developed by the World Medical Association as a statement of ethical principles to provide guidance to physicians and other participants in medical research involving human subjects.
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Beskow LM, Burke W, Merz JF, Barr PA, Terry S, Penchaszadeh VB, Gostin LO, Gwinn M, Khoury MJ. Informed Consent for Population-Based Research Involving Genetics. JAMA. 2001 Nov 14;286(18):2315-21.
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Hakkimian JD, Taube S, Bledsoe M, Aamodt R. 50-State survey of laws regulating the collection, storage, and use of human tissue specimens and associated data for research. [Internet]. Bethesda, MD: Cancer Diagnosis Program National Cancer Institute. [cited 2008 Apr 7].
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KCET / Wired Magazine. 2007 Biobanking. [Internet]. Los Angeles, CA: Community Television of Southern California. [cited 2008 Apr 24].
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NIH. 2008. Bioethics resources on the Web. [Internet]. Bethesda, MD: National Institutes of Health. [cited 2008 Apr 7].
