CitationFine, Jo-David; Johnson, Lorraine B.; Moshell, Alan; & Suchindran, Chirayath M. (1999). The Risk of Selected Extracutaneous Outcomes in Inherited Epidermolysis Bullosa: Lifetable Analyses of the National Epidermolysis Bullosa Registry Study Population. In Fine, Jo-David; Bauer, Eugene A.; McGuire, Joseph; & Moshell, Alan (Eds.), Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances and the Findings of the National Epidermolysis Bullosa Registry (pp. 193-205). Baltimore: Johns Hopkins University Press.
AbstractInherited epidermolysis bullosa (EB) is a group of rare genetic diseases in which the skin is mechanically very fragile, resulting in chronic blister formation. In the most severe cases, affected persons may also experience disease involvement of other organs, cancer, and even premature death. In this book, a distinguished group of medical authorities presents the first comprehensive examination of EB employing a large, well-characterized research study population and using the latest epidemiological and biostatistical research principles. Unique to this work is its assessment of more than two thousand patients with EB, the largest such sample likely ever to be assembled in the world.
Reference TypeBook Chapter
Book TitleEpidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances and the Findings of the National Epidermolysis Bullosa Registry
Johnson, Lorraine B.
Suchindran, Chirayath M.